Thursday, August 30, 2012

National Pulmonary Fibrosis Awareness Month

I received an e-mail from the Coalition for Pulmonary Fibrosis folks regarding the first ever Pulmonary Fibrosis Awareness Month this September. The information and links are below. 


September is the FIRST National Pulmonary Fibrosis Awareness Month.  For the last 9 years, we've held National PF WEEK -- and expanded it this year at the suggestion of patients/families like you! and the Coalition for Pulmonary Fibrosis (CPF) needs your help to raise awareness of PF in your local area.  Click here to see all of the CPF's events related to PF Month:http://www.coalitionforpf.org/cpf_advocacy_sept2012.php
There are things you can do right now - at your home and at your computer - to make a difference!
Here is what you can do NOW!
1. If you haven't already, please sign the PF Petition (and share it with others!)that we will take to Congress in 2 weeks to show them how much Americans care about finding treatments and a cure for Pulmonary Fibrosis.  Almost 3,000 people have signed on to date.  Please post this link to your Facebook page, LinkedIn, Twitter and any other place in the social media world you call home: http://cpf.convio.net/site/Survey?ACTION_REQUIRED=URI_ACTION_USER_REQUESTS&SURVEY_ID=1621
2. We need your help NOW to get your members of Congress (U.S. House of Representatives and U.S. Senate) on board with the Pulmonary Fibrosis Research Enhancement Act (H.R. 2505 and S. 1350).  Members respond to local requests from their constituents before signing on to national legislation, like the PF bill.  So, let them know now that YOU support it!  Simply click here to send a note now!
3.  Hold a gathering in your local area (no matter how small) to show your support for PF Month!  Or "gather" your friends on Facebook and other social media sites to ask for their support of PF Month! 
Click here http://www.coalitionforpf.org/cpf_events.php to view our other events for inspiration!
National Pulmonary Fibrosis Month 2012 will be successful with your Help!  Thank you!
Sincerely,
The Coalition for Pulmonary Fibrosis

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