ILD Free Seminar In-Person or Online

William is home. The house is full once again. We are planning Sunday's afternoon get together with Wayne' family and British Don, I am buying food today while he and Michael are running around. So good to have him home.

I received this information from the Coalition for Pulmonary Fibrosis about a free IPF patient event next weekend. It would also be helpful for people who have other ILDs. All the information is below.

This is a reminder of the free IPF patient event (join online or in-person) at Johns Hopkins on Saturday, Sept. 27th!   The event is  open to you, your family and caregivers. Supplemental oxygen refills will be available and parking is easy and close!  Please RSVP now!  Email Doliver Perez at dperez@thoracic.org if you'd like to attend in person. To join online, just go to this link and register:  https://www1.gotomeeting.com/register/701358600.  This IPF Event is being co-hosted by the Coalition for Pulmonary Fibrosis, the American Thoracic Society and the Johns Hopkins University School of Medicine.  This is a great opportunity to get the latest updates (and there are many!) in PF Research and treatment efforts. We encourage participation by all people impacted by PF or PF related Interstitial Lung Disease (ILD) regardless of where your healthcare is provided. Please invite others who might be interested to join us at this event. If you are planning to attend, please email Dioliver Perez at dperez@thoracic.org and include the number of people who will be with you. Please RSVP by email to Mr. Perez by Wednesday, September 24, 2014.  If you are going to the FDA IPF Workshop in Silver Spring, MD, this may be a perfect opportunity (even if you are not from the area) since it's in the region and is the day after the FDA Workshop (the FDA IPF Workshop is Friday, Sept. 26, 2014.  [For more information on the important FDA event that encourages patients and family members and caregivers to attend, visit the FDA site at:http://www.fda.gov/ForIndustry/UserFees/PrescriptionDrugUserFee/ucm395774.htm).] Please see the Johns Hopkins Patient Event agenda and list of speakers further down in this email. WHERE:  Johns Hopkins Asthma and Allergy Center Auditorium 5501 Hopkins Bayview Circle, Baltimore, MD 21224 WHEN: Saturday, September 27th from 9:00 am to 2:00 pm. WHO: Open and free to all IPF and ILD patients, family members and the general public. Complimentary lunch will be provided. An oxygen refill station will be onsite for those attendees with portable oxygen concentrators. Parking is available in the Mid-Campus Lot directly across the street from the auditorium.  RSVP: Please RSVP by EMAIL: Dioliver Perez:  dperez@thoracic.org Sincerely, The Coalition for Pulmonary Fibrosis Agenda 9:00-10:00 am Registration and light breakfast  10:00-10:15 am Welcome from the ATS - Mr. Courtney L. White Welcome from the CPF - Ms. Teresa Barnes Welcome from Johns Hopkins ILD Program - Sonye Danoff, MD, PhD  10:15-10:40 am  IPF, ILD, PF: Why All the Letters and What Difference Do They Make? - Cheilonda Johnson, MD, MHS  10:40-11:05 am Clinical Trials in IPF: Big News and More to Come Maureen Horton, MD  11:05-11:30 am  Lung Transplantation in PF: Who? What? When? And Why? - Pali Shah, MD  11:30 am-12:00pm Questions for morning speakers  12:00-1:00 pm Lunch with speakers  1:00-1:25 pm How Can Patients, Family Members and Caregivers Help Move PF Efforts Forward? - Teresa Barnes  1:25 -1:50 pm Understanding What Matters to You: Patient Centered Outcomes Research - Sonye Danoff, MD, PhD and John Bridges, PhD 1:50-2:00 pm Wrap up and final questions Speakers and affiliations: Sonye Danoff, MD, PhD  Co-Director, Johns Hopkins ILD/IPF Program  Associate Professor of Medicine  Johns Hopkins University School of Medicine  Maureen Horton, MD  Co-Director, Johns Hopkins ILD/IPF Program  Associate Professor of Medicine  Johns Hopkins University School of Medicine  Cheilonda Johnson, MD, MHS  Johns Hopkins ILD/IPF Program Instructor,  Johns Hopkins University School of Medicine  Pali Shah, MD  Associate Medical Director, Lung Transplant  Program  Assistant Professor of Medicine  Johns Hopkins University School of Medicine  John Bridges, PhD  Associate Professor  Health Policy and Management  Johns Hopkins Bloomberg School of Public  Health  Teresa Barnes  VP, Patient Outreach and Program Support  Coalition for Pulmonary Fibrosis       Coalition for Pulmonary Fibrosis 10866 W. Washington Blvd. #343 Culver City, CA 90232 (888) 222-8541 info@coalitionforpf.org