Tuesday, July 28, 2020

WAKE UP, LITTLE MUSCLES!

I'm still off the transplant list but I have an appointment to be assessed on August 20th. On that day, I will perform a six-minute walk test, pulmonary function tests, a CT scan and will meet with a transplant doctor to determine if I am ready to be listed. Again.

All in all, I am not feeling positive about it. Physical therapy is helping and these are probably the best therapists I have ever experienced but, as they keep telling me, it takes time to grow muscles. My collapsed L4 is not allowing the nerves to feed the muscles. My left hip is the problem as my right leg is very weak. I can and will put in the work but I can't control the length of time it will take to get up from the hospital bed and walk correctly post-transplant.

Two therapists are involved in my care, so far. After meeting with both, we have a plan. I will work with them for another two weeks then we will assess whether I will be able to walk without a limp, cane or walker by the August 20 appointment. If it appears that I am not ready to take the tests, I will reschedule them for six weeks later. During the time before the tests, I will meet with the physical therapists for two weeks then stay home and work for two weeks then back to them to make another assessment to the next level. A two-week cycle. This plan will also allow us to work more strategically within the Medicare limits of twenty PT treatments per year. 

Michael and I are well and keeping busy. William is enjoying his time at home, a rare event. He expects no concerts to resume until 2022. My mom is home from assisted living and doing way too much! 

I hope you, dear Reader, are safe and being careful out in the world. Crazy times.