Thanks for the nudge, Kathi. Yes, it is time for an update.
The Good: William arrived on Sept 2 and stayed for two weeks. For almost a week, he and I were alone as Michael flew to Austin to drive the rental van filled with British Don's stuff back to California, about 90 minutes north of us. I had cooked several meals before Michael left, William made Michael's birthday dinner of Maryland Crab with Crab Soup and Tater Tots. He even made the German Chocolate Cake. Ron next door and my mom received a nice big piece, too. William is marvelous with my mom and she adores him. I ended up cooking several meals but William did most of the cooking. He even made pizza with homemade dough and tomato sauce, Italian Sausage, thinly sliced fennel and finished with fresh Basil just before we ate it. Delicious! We looked through old family albums and lots of photos from his childhood. He took several albums home with him. He also took my Grandmother's Pre-WWII Dresden Tea set, Michael's phonograph along with my dad's albums - probably around 75 of them. It was a really nice two weeks.
The Bad: The fires burning miles north of us drifted in on the winds and stayed for over a week. We couldn't see across the street. I had to go into it for physical therapy and doctor appointments for mom but I wore a very heavy mask. Still, it was difficult to breathe at times. Recently, I have been coughing really hard and needing my inhaler more than usual. I fear that I am having a downturn of the disease and going to finally need the transplants. The only problem is that I still limp or need a cane so I do not qualify for transplants until I can walk a certain distance within a certain amount of time. If I need transplants now, I will not get them. Scary.
The Ugly: The smoke. For one day during the worst of the smoke, the smoke was trapped above the atmospheric levels and blocked all light. During the day, there was no sun, only darkness. When it was a bit lighter, the sun was a deep red. Maroon. At 2:30, I felt like we should get in our pajamas and hop into bed. The word everyone used was Creepy. I took the photo below but it really doesn't do it justice. The filters on the iPhone cleaned it up and made it brighter.
4 comments:
It was really nice to read your update! Your blog was one of the first ones I found when I was diagnosed in the fall of 2018. I have read through a lot of your posts and it was very helpful to me then so I do like to keep updated! You seem to maintain a good attitude in the middle of all the "stuff" you are going through!
The photo of the German Chocolate Cake was very tempting. Cake is one of my weaknesses!
I do hope you are able to get back to being able to walk better soon. Do you feel like you are making progress there? It would be nice to see you back on the list again!
Thanks for the update! Looking forward to more in the future!
Kathi
Thanks for the comments about my blog. I always wonder if it has helped people. I really try to offer information or anything I learned along the way. The biggest thing I try to live by is to roll the illness into our lives. I want to keep growing and learning and moving forward in life. We also laugh a lot. That helps! Thanks again!
I am so thankful for your blog. I haven't read it since 2018 or so. I have been living with lung disease for many years.
I so hope it has been helpful, Yvonne. You clearly are living well with a lung disease. Good for you! Keep going.
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