Updated RSVP Email Address for PF Patient Event

OOPS! There was an incorrect email address for the RSVP to register for the PF patient event. The corrected address is below.

I am watching William pack up his car to begin the 800+ mile home. Rather sad...We did have a fantastic night with Elle, Marco and their daughter Ada last night. Homemade pho, ceviche and spring rolls filled with pork and taro. Delightful. We didn't get home until midnight. Michael is going to be late to work!!

Since I have to go to the orchestra rehearsal tonight, I am going back to bed this morning then not much else other than picking up the house. Done. I am done.

Our previous message had an incorrect RSVP email address for registration for the in-person Pulmonary Fibrosis patient event at Johns Hopkins being held this Saturday, September 27th.  We apologize for the inconvenience.  Please emaildperez@thoracic.org to reserve your space for the in-person meeting.  To join the meeting via webinar/online, you can still register here:  https://www1.gotomeeting.com/register/701358600. Our original message with event details appears below:   This is your last chance to join online or inperson a free IPF patient event at Johns Hopkins this Saturday, Sept. 27th!   You've been hearing about all of the exciting news and progress happening in Pulmonary Fibrosis, now take the opportunity to hear the latest updates directly from the experts.   For those joining in-person, supplemental oxygen refills will be available and parking is easy and close, plus lunch is complimentary!   This IPF Event is being co-hosted by the Coalition for Pulmonary Fibrosis, the American Thoracic Society and the Johns Hopkins University School of Medicine.  This is a great opportunity to get the latest updates (and there are many!) in PF Research and treatment efforts. We encourage participation by all people impacted by PF or PF related Interstitial Lung Disease (ILD) regardless of where your healthcare is provided. Please invite others who might be interested to join us at this event. If you are planning to attend, please email Dioliver Perez at dperez@thoracic.org and include the number of people who will be with you. Please RSVP by email to Mr. Perez by 5:00 p.m. Eastern Wednesday, September 24, 2014.  Please see the Johns Hopkins Patient Event agenda and list of speakers further down in this email. WHERE:  Johns Hopkins Asthma and Allergy Center Auditorium 5501 Hopkins Bayview Circle, Baltimore, MD 21224 WHEN: Saturday, September 27th from 9:00 am to 2:00 pm. WHO: Open and free to all IPF and ILD patients, family members and the general public. Complimentary lunch will be provided. An oxygen refill station will be onsite for those attendees with portable oxygen concentrators. Parking is available in the Mid-Campus Lot directly across the street from the auditorium.  RSVP: Please RSVP by EMAIL: Dioliver Perez:  dperez@thoracic.org Sincerely, The Coalition for Pulmonary Fibrosis Agenda 9:00-10:00 am Registration and light breakfast  10:00-10:15 am Welcome from the ATS - Mr. Courtney L. White Welcome from the CPF - Ms. Teresa Barnes Welcome from Johns Hopkins ILD Program - Sonye Danoff, MD, PhD  10:15-10:40 am  IPF, ILD, PF: Why All the Letters and What Difference Do They Make? - Cheilonda Johnson, MD, MHS  10:40-11:05 am Clinical Trials in IPF: Big News and More to Come Maureen Horton, MD  11:05-11:30 am  Lung Transplantation in PF: Who? What? When? And Why? - Pali Shah, MD  11:30 am-12:00pm Questions for morning speakers  12:00-1:00 pm Lunch with speakers  1:00-1:25 pm How Can Patients, Family Members and Caregivers Help Move PF Efforts Forward? - Teresa Barnes  1:25 -1:50 pm Understanding What Matters to You: Patient Centered Outcomes Research - Sonye Danoff, MD, PhD and John Bridges, PhD 1:50-2:00 pm Wrap up and final questions Speakers and affiliations: Sonye Danoff, MD, PhD  Co-Director, Johns Hopkins ILD/IPF Program  Associate Professor of Medicine  Johns Hopkins University School of Medicine  Maureen Horton, MD  Co-Director, Johns Hopkins ILD/IPF Program  Associate Professor of Medicine  Johns Hopkins University School of Medicine  Cheilonda Johnson, MD, MHS  Johns Hopkins ILD/IPF Program Instructor,  Johns Hopkins University School of Medicine  Pali Shah, MD  Associate Medical Director, Lung Transplant  Program  Assistant Professor of Medicine  Johns Hopkins University School of Medicine  John Bridges, PhD  Associate Professor  Health Policy and Management  Johns Hopkins Bloomberg School of Public  Health  Teresa Barnes  VP, Patient Outreach and Program Support  Coalition for Pulmonary Fibrosis   Coalition for Pulmonary Fibrosis 10866 W. Washington Blvd. #343 Culver City, CA 90232 (888) 222-8541 info@coalitionforpf.org