 This is the Time to Ask Your Members of Congress to Support the PF Bill! The Pulmonary Fibrosis Research Enhancement Act (House version H.R. 2505 and Senate version S. 1350) was recently reintroduced and we need your help! Congress is scheduled to begin its Summer Recess next week. So, the time is NOW to schedule your meeting with your Member of Congress and Senators while they are in your home district! The Pulmonary Fibrosis Research Enhancement Act (PFREA) was introduced July 12, 2011 in the Senate by Senators Chris Coons (D-DE) and Mike Crapo (R-ID) in the U.S. House of Representatives by Rep. Erik Paulsen (R-MN) and Rep. Tammy Baldwin (D-WI). Remember, There are 3 Easy Ways to Help 1) Visit your member in district (face time with your Member really works! Share your story about PF) The CPF encourages you to schedule a meeting now with your member of Congress when he/she is in your home district to support the Pulmonary Fibrosis Research Enhancement Act. Letters are important, but having a face-to-face meeting with your Member of the U.S. House of Representatives and your Senator will allow you to share your personal story of your connection to PF and to personally ask for your legislator’s support of H.R. 2505 and S. 1350, the first legislation that will directly help PF patients. If your legislator is already a co-sponsor, visit him/her and thank them for their support. To find out who is a current co-sponsor (or who is not), please go towww.thomas.loc.gov, open the website and type the bill number, in the box in the center of the page - H.R. 2505 or S. 1350. That will give you a link to the co-sponsor list. 2) Take action today by calling your Representative and Senator To contact your Representative call the Capitol Switchboard at (202) 224-3121 and ask for your Representative or Senator or give your zip code if you do not know their name. When you are connected to an office, ask for the Health Legislative Assistant. 3) Send a letter or email Click Here to Email Your Members of Congress Now! Another effective way to contact your legislator is via email or a letter. Call your Representative’s office and ask for the Health Legislative Aide’s email address. If you leave a voicemail message, include your name and phone number so that they can call you back. Sample phone message: “I am a constituent and a Pulmonary Fibrosis (patient, family member, friend) and I am calling to ask Rep/Sen. to co-sponsor the Pulmonary Fibrosis Research Enhancement Act, (for the House H.R. 2505– for the Senate S. 1350). These bills will create a much needed national patient registry to help scientists and researchers to learn more about the disease as quickly as possible so that treatments may be found. There is currently no FDA approved treatment for PF and as many people die to it each year as to breast cancer. Please help us now by signing onto (H.R. 2505 or S. 1350). To your Representative: Please consider co-sponsoring the bill - we need your support. Rep. Erik Paulsen (R-MN) is leading this bipartisan effort along with Rep. Tammy Baldwin (D-WI). To your Senator: Please consider co-sponsoring the bill – we need your support. Senator Chris Coons (D-DE) is leading this effort with Senator Mike Crapo (R-ID), Senator Mark Kirk (R-IL), and Senator Patty Murray (D-WA) as co-sponsors. You can also help by:
Mishka Michon CEO, Coalition for Pulmonary Fibrosis |
Tuesday, August 9, 2011
Pulmonary Fibrosis Bill in Congress
On August 3rd I received an e-mail from the Coalition for Pulmonary Fibrosis, the wonderful group who has funded research and is now putting the spotlight on the disease through a Congressional bill. I have copied the entire e-mail below. Please contact your representatives and ask that they support this bill.
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