Coalition for Pulmonary Fibrosis

Several years ago, we were at a symposium about fibrosis and lung transplants. Michael and I shared a table with the women behind the Coalition for Pulmonary Fibrosis.

Since then, I have received their online newsletters and update information. They really push for more research and will do anything to bring the spotlight about fibrosis to the masses including the political arena. In my opinion, they are doing a great job.

These people know what they are doing. Here is their contact information and their web site:
http://www.coalitionforpf.org/

If you can support them, fantastic. Use the information they have gathered to continue your own education about your disease. If they can help find a breakthrough for the treatment for PF, that is the door for the rest of the ILDs to follow through.

From their web site:

CPF Accomplishments

• Provide education, information, resources and hope for patients suffering from Pulmonary Fibrosis
• Fund emerging research into new approaches to treat - and ultimately cure - Pulmonary Fibrosis
• Serve as a national voice for patients and physicians by advocating on their behalf in Washington D.C.
• Improve detection, diagnosis and treatment of PF in the medical community
• Increase public awareness of Pulmonary Fibrosis

The CPF's nonprofit partners include the American Thoracic Society, the Anne Harroun Landgraf Foundation, the Caring Voice Coalition, the Genetic Alliance, the Mary D. Harris Memorial Foundation, the National Coalition of Autoimmune Patient Groups, the National Organization for Rare Disorders (NORD), the Pulmonary Paper, the Second Wind Lung Transplant Association, and more than 35 leading medical and research centers nationwide.