Wednesday, September 18, 2013

Webinar Saturday - The Coalition for Pulmonary Fibrosis

I haven't written lately about the fantastic organization, The Coalition for Pulmonary Fibrosis. I met the founders many years ago and their director was at a dinner before my speech last year at the American Thoracic International Conference. They read this blog. What I love about them is that they directly fund specific research. Important and directed research. They are making a difference.

They are offering a Webinar this Saturday and the information on how to join them online is below. It will be worthwhile.


This is an invitation to a free Pulmonary Fibrosis webinar being held on Saturday, September 21!  Also, if you're in the area near Johns Hopkins' Bayview campus in Baltimore, MD, you can join the pulmonary fibrosis patient event live!  Details on both are below for you.
TO JOIN THE LIVE EVENT
To reserve your seat now ONLY for the free IN-PERSON MEETING ON Idiopathic Pulmonary Fibrosis (IPF) at the seminar at Johns Hopkins on Saturday, Sept. 21Reserve now by emailing Teresa Barnes at tbarnes@coalitionforpf.org TODAY! (DETAILS FURTHER DOWN IN THIS EMAIL)
TO JOIN THE WEBINAR
As part of National Pulmonary Fibrosis Awareness Month, the American Thoracic Society, the Coalition for Pulmonary Fibrosis and the Johns Hopkins University School of Medicine presents a free webinar on  pulmonary fibrosis. The webinar is being held on Saturday, September 21, 2013 at 10:15 am ET and will be hosted by Sonye Danoff, MD of Johns Hopkins University School of Medicine.

Title:
One of These Things Isn't Like the Others: Distinguishing IPF From Other Forms of ILD
Date:
Saturday, September 21, 2013
Time:
10:15 AM - 11:15 AM EDT
 IF YOU ARE JOINING THE WEBINAR, FOLLOW THE INSTRUCTIONS BELOW (PLEASE DON'T EMAIL TERESA BARNES
TO JOIN THE WEBINAR)
After registering you will receive a confirmation email containing information about joining the Webinar.

System Requirements
PC-based attendees
Required: Windows® 8, 7, Vista, XP or 2003 Server
 
Mac®-based attendees
Required: Mac OS® X 10.6 or newer
 
Mobile attendees
Required: iPhone®, iPad®, Android™ phone or Android tablet

Space is limited.
Reserve your Webinar seat now at:
https://www1.gotomeeting.com/register/443416896

TO JOIN US FOR AN IN-PERSON EVENT AT JOHNS HOPKINS BAYVIEW CAMPUS
The Coalition for Pulmonary Fibrosis is proud to invite you to a free pulmonary fibrosis seminar at Johns Hopkins Bayview Campus in Baltimore, MD on Saturday, September 21st.  This IPF Event is being co-hosted by the CPF, the American Thoracic Society and the Johns Hopkins University School of Medicine.    
Please see the agenda and list of speakers further down in this email.
patients at PF event at Harvard spring 2008
WHERE:  Johns Hopkins Asthma and Allergy Center Auditorium 5501 Hopkins Bayview Circle, Baltimore, MD 21224
WHEN: Sat, September 21st from 9:00 am to 2:00 pm.
WHO: Open and free to all IPF patients, family members and the general public.Complimentary lunch will be provided. An oxygen refill station will be onsite for those attendees with portable oxygen concentrators. Parking is available in the Mid-Campus Lot directly across the street from the auditorium. 
RSVP:
Please RSVP by EMAIL: to Teresa Barnes: tbarnes@coalitionforpf.org 

Sincerely,
The Coalition for Pulmonary Fibrosis

PROGRAM:
• 9:00-10:00 am - Registration and light breakfast
• 10:00-10:15 am - Welcome from the ATS Mr. Courtney White
- Welcome from the CPF Ms. Teresa Barnes
Sonye Danoff, MD, PhD,Co-Director, Johns Hopkins ILD/IPF Program Associate Professor of Medicine, Johns Hopkins University School of Medicine
Co-Director, Johns Hopkins ILD/IPF Program Associate Professor of Medicine, Johns Hopkins University School of Medicine
- Welcome from Johns Hopkins ILD Program
Sonye Danoff, MD
• 10:15-10:40 am - “One of these things isn’t like the other: Distinguishing IPF from other forms of Interstitial Lung Disease”
• 10:40-11:15am - “Making sense of all the tests: Chest CT scans, Pulmonary Function tests and More”
• 11:15-11:40 am - “Little things make a difference: Oxygen, Exercise, Travel in IPF”
• 11:40 am -12:05 pm - “Treating IPF: Update on Clinical Trials in IPF”
• 12:05-12:15 pm - Questions for morning speakers
• 12:15-1:00 pm - Lunch with speakers
• 1:00-1:30 pm - “Other Options: Lung Transplantation in ILD
1:30-2:00 p.m. IPF discussion
Speakers:
Sonye Danoff, MD, PhD, Co-Director, Johns Hopkins ILD/IPF Program Associate Professor of Medicine, Johns Hopkins University School of Medicine
Maureen Horton, MDCo-Director, Johns Hopkins ILD/IPF Program Associate Professor of Medicine, Johns Hopkins University School of Medicine 
Leann Silhan, MD, MPH, Johns Hopkins ILD/IPF Program Instructor, Johns Hopkins University School of Medicine
Elizabeth Schonhoft, RN, Nurse Coordinator, Johns Hopkins ILD/IPF Program, Johns Hopkins University School of Medicine
Mary Armanios, MD. Associate Professor of Oncology, Johns Hopkins University School of Medicine

No comments: