Are you wondering how can you, as a patient, family member or caregiver, contribute to the FDA Idiopathic Pulmonary Fibrosis (IPF) Workshop coming up in September? Even if you're not going in person, there are many ways to contribute to this game changing meeting.
Join our FDA preparation webinar, "Sharing Your Perspective with the FDA" next Wednesday, August 13th at 2 p.m. Eastern to learn simple ways you can share your experience and also learn what to expect at the FDA IPF Workshop whether you're attending in person or attending the workshop online.
Experts from FasterCures (www.fastercures.org), including Kim McCleary and Shawn Sullivan, will be panelists on the webinar and will share from their experience with these kinds of FDA workshops to help you know what to expect and how to make the most of your effort to share your story.
And, if you can't join the FDA IPF Workshop in person or online, we can tell you how to share your opinions and experience with IPF a few other ways, too, including via the CPF survey, the public docket online, or via letters and phone calls.
There are many ways to tell the FDA about your experience with IPF - the most important thing is to find a method that works for you and use it to tell your story. However you decide to contribute, your experience is important and your voice needs to be heard by the FDA.
Please join the CPF's preparation webinar on Wednesday, August 13th at 2:00 p.m. Eastern, to understand how you can tell your story to the FDA and how you can positively impact the drug development process for IPF patients now and in the future.
Here are the webinar details:
Topic: Sharing Your Perspective with the FDA
Host: CPF
Date and Time: (see your time zone and the time below)
Wednesday, August 13, 2014 2:00 pm, Eastern Daylight Time (New York, GMT-04:00)
Wednesday, August 13, 2014 1:00 pm, Central Daylight Time (Chicago, GMT-05:00)
Wednesday, August 13, 2014 12:00 pm, Mountain Daylight Time (Denver, GMT-06:00)
Wednesday, August 13, 2014 11:00 am, Pacific Daylight Time (San Francisco, GMT-07:00)
To register for "Sharing Your Perspective with the FDA"
2. Click "Register".
3. On the registration form, enter your information and then click "Submit".
Once the host approves your registration, you will receive a confirmation email message with instructions on how to join the event.
IMPORTANT NOTICE: This WebEx service includes a feature that allows audio and any documents and other materials exchanged or viewed during the session to be recorded. By joining this session, you automatically consent to such recordings. If you do not consent to the recording, discuss your concerns with the meeting host prior to the start of the recording or do not join the session. Please note that any such recordings may be subject to discovery in the event of litigation.
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