The Coalition for Pulmonary Fibrosis (CPF) is proud to invite you to a free pulmonary fibrosis seminar at Johns Hopkins Bayview Campus in Baltimore, MD on Saturday, September 27th. This IPF Event is being co-hosted by the CPF, the American Thoracic Society and the Johns Hopkins University School of Medicine.
We encourage participation by all people impacted by PF or PF related Interstitial Lung Disease (ILD) regardless of where your healthcare is provided. Please invite others who might be interested to join us at this event. If you are planning to attend, please email Dioliver Perez at dperez@thoracic.org and include the number of people who will be with you. Please RSVP by email to Mr. Perez no later than Wednesday, September 24, 2014. Space is limited so please respond early.
If you are going to the FDA IPF Workshop in Silver Spring, MD, this may be a perfect opportunity (even if you are not from the area) since it's in the region and is the day after the FDA Workshop (the FDA IPF Workshop is Friday, Sept. 26, 2014. For more information on this important event that encourages patients and family members and caregivers to attend, visit the FDA site at:http://www.fda.gov/ForIndustry/UserFees/PrescriptionDrugUserFee/ucm395774.htm).
Please see the agenda and list of speakers further down in this email.
WHERE: Johns Hopkins Asthma and Allergy Center Auditorium 5501 Hopkins Bayview Circle, Baltimore, MD 21224
WHEN: Sat, September 27th from 9:00 am to 2:00 pm.
WHO: Open and free to all IPF and ILD patients, family members and the general public. Complimentary lunch will be provided. An oxygen refill station will be onsite for those attendees with portable oxygen concentrators. Parking is available in the Mid-Campus Lot directly across the street from the auditorium.
RSVP:
Sincerely,
The Coalition for Pulmonary Fibrosis
Agenda
9:00-10:00 am Registration and light breakfast
10:00-10:15 am Welcome from the ATS - Mr. Courtney L. White Welcome from the CPF - Ms. Teresa Barnes Welcome from Johns Hopkins ILD Program - Sonye Danoff, MD, PhD
10:15-10:40 am IPF, ILD, PF: Why All the Letters and What Difference Do They Make? - Cheilonda Johnson, MD, MHS 10:40-11:05 am Clinical Trials in IPF: Big News and More to Come Maureen Horton, MD
11:05-11:30 am Lung Transplantation in PF: Who? What? When? And Why? - Pali Shah, MD
11:30 am-12:00pm Questions for morning speakers
12:00-1:00 pm Lunch with speakers
1:00-1:25 pm How Can Patients, Family Members and Caregivers Help Move PF Efforts Forward? - Teresa Barnes
1:25 -1:50 pm Understanding What Matters to You: Patient Centered Outcomes Research - Sonye Danoff, MD, PhD and John Bridges, PhD
1:50-2:00 pm Wrap up and final questions
Speakers and affiliations:
Sonye Danoff, MD, PhD
Co-Director, Johns Hopkins ILD/IPF Program
Associate Professor of Medicine
Johns Hopkins University School of Medicine
Maureen Horton, MD
Co-Director, Johns Hopkins ILD/IPF Program
Associate Professor of Medicine
Johns Hopkins University School of Medicine
Cheilonda Johnson, MD, MHS
Johns Hopkins ILD/IPF Program Instructor,
Johns Hopkins University School of Medicine
Pali Shah, MD
Associate Medical Director, Lung Transplant
Program
Assistant Professor of Medicine
Johns Hopkins University School of Medicine
John Bridges, PhD
Associate Professor
Health Policy and Management
Johns Hopkins Bloomberg School of Public
Health
Teresa Barnes
VP, Patient Outreach and Program Support
Coalition for Pulmonary Fibrosis
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